While HHS is not creating a new registry of Americans with autism, the agency is launching a $50 million research effort to understand the causes of autism spectrum disorder and improve treatments, an ...

The Autism Science Foundation said the program raised concerns over privacy and confidentiality. On Friday, April 25, an HHS official told USA TODAY it is not creating such a registry.

NEW YORK (PIX11) — An autism registry will not be created, a spokesperson for the United States Department of Health and Human Services told PIX11 News in an email Thursday afternoon. Instead of ...

Compiling data and creating a new registry for autism CBS News reported that the National Institutes of Health, which operates under the Department of Health and Human Services, announced earlier ...

The Autism Science Foundation said in a statement that the limited details provided has worried families about confidentiality. "The use of registries and registry data in general can be a valuable ...

Another person wrote, "RFK Jr.'s autism registry is a chilling overreach, tracking private medical data without consent violates HIPAA and echoes eugenics. It's not about health; it's about control.

SOURCE: CBS News, April 28, 2025 What This Means For You Autism research will continue without a new nationwide patient registry, using secure, private data to protect private information.

This week, National Institutes of Health Director Dr. Jay Bhattacharya sent shockwaves through the autism community by announcing the creation of a “disease registry” to track autistic people ...

SOURCE: CBS News, April 28, 2025 What This Means For You Autism research will continue without a new nationwide patient registry, using secure, private data to protect private information.

With Health Secretary Robert F. Kennedy Jr. moving forward on a national autism registry, parents in Cumberland County say condition is too complex for a one-size-fits-all approach.