Columnist Jasmine Ramos describes how three disability advocates, Brooke Ellison, Judy Heumann, and Christopher Reeve, have ...

Columnist Ari Anderson's health crisis brought home the importance of communicating to his caregivers when something doesn't ...

Columnist Sherry Toh is taking up a new creative project, even if it demands patience: making videos about makeup, aimed at ...

Columnist Connie Chandler encourages patients and caregivers to share their positive stories with their doctors.

A higher-dose regimen of nusinersen may provide further benefits to people with SMA relative to the approved regimen, its ...

Robin Collins is a self-described “little old lady.” She’s 4 feet tall in her wheelchair and unexpectedly hurtling toward age ...

Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in ...

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for ...

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA ...

Richard Kravitz, MD, shares why self-advocacy matters in healthcare and how to ask questions with confidence, clarity, and compassion.