Life in a Body Slowly Turning To Bone: Kathleen’s Story
4:57
YouTubePatient Voice
Life in a Body Slowly Turning To Bone: Kathleen’s Story
Kathleen Degenhardt lives with fibrodysplasia ossificans progressiva (FOP), an ultra-rare connective tissue disorder that turns muscle, tendons, and ligaments to bone. For Kathleen, treatment innovation and a tight-knit support community have been instrumental to her living a good life with FOP. Now, Kathleen shares her story in hopes of ...
388.2K viewsJun 22, 2023
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